What a milestone.
I am sure that isn't nearly exciting enough of an update.
I can tell you that I have been adapting well with the walker at work, which has been an interesting adventure. People still wonder why I need it as I am not using it all the time. But they are scared of me running over their toes, so I do get my way in meetings.
I have started organizing my first fundraiser. No idea why it is so anxiety provoking for me. I hate asking people for money let alone anything else. But I think of all the new FSH champions I have met and I try to focus my asks for them. It makes it easier.
I'm back in the relationship world. Very ironic how life works out. Getting back in a relationship with someone when you are at the worst part of FSH... (to now). Well, whatever happens, I have learned that I am strong enough to handle it.
Progress of the disease, well I am still fairly independent. Stairs, hills and uneven surfaces are still not my friends and I have had to turn back at one or two events because of inaccessibility. I am gracious about it even though the event organizer is mortified. It's a learning experience for everyone.
The pain is manageable but I have started an anti-inflammatory diet which has been helpful. Anything to keep the pain and progression away until there is a treatment.
Ah, a treatment. Still looks promising. I hope it's in time.
Until then I have been blessed with a wonderful, quirky group of family and friends who make this journey worthwhile. Thanks to all of you!
